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Monday, 2 July 2012

Migraine and Stress (again!)

Migraine Mum is stressed. I know stress is an everyday part of life for all people and I know it's something that I have to learn to handle better......

Having children and all that goes with family life can feel like a tidal wave of overwhelmings, especially when you're tired and/or in post migraine phase. I know stress can cause me a migraine over time. It's all about overload! Here are some examples from my life.......

Stressful situations:
1. Monday morning: ah, quick, child no 3 is playing happily on her own.... I can get the washing out of the washing machine that's been in there since yesterday..yippee!! (small things I know)....I'll get the washing basket.

Oh, the washing basket is full of child no 2's new clothes that I meant to put away in her cupboard. I'll quickly do that before child no 3 finds me (sneaky)

Hang on, I can't even get to the cupboard, there's too many toys in the way.....I'd better put them away then.........I manage to put the toys away and the clothes rapidly. I'm so pleased with myself (again, small things I know) Great, I can now do the original job of getting the clothes out of the washing machine......

Child No 3 appears. She takes one look at the empty washing basket and walks off with it. I look at her in dismay and she says "I've been looking for this mummy! It's my boat!"

2. Monday afternoon: Migraine mum needs a break so all children have been forced to "lull" as we put it in our family which is a time of rest doing computer, TV or whatever....."I DON'T MIND AS LONG AS YOU DON'T BOTHER MUM!" An unrealistic expectation I know.....

First game console malfunctions.....I do the battery change. Child no 3 appears crying as something she has seen on children's tv has upset her. I talk it through with her and then put something different on for her. Child no 1 calls me with excitement as he has discovered another app in which a fish farts (yes really).

I finally sit down to try to fix my phone which is not receiving emails.......oh quick, turn down the potatoes....arggh! I forgot about the sausages!! I sit down again and begin to type in a code that is about 15 digits long...is that an O or an 0?! MUM!!!! game console still malfunctioning, another battery change, please work!

I sit down again and retype the long digit code, nearly there.....knock knock knockity knock.....someone at the door.....I am muttering to myself (can't write it down sorry)........hello! we'd just like to raise your awareness of....I can't listen today sorry. Can't listen to what? Everything!! Well, it won't take long......Sorry! NO! and I shut the door. Phew. Officially frazzled. Needless to say, I did not fix my phone.

So, what to do with all this stress? Breathing is generally recommended.

Effective breathing is even better. Lateral Breathing involves using your diapraghm, not just the top half of your body. Allowing your stomach and rib cage to expand outwards as you breathe in and breathe inwards as you breathe out. I do a few of these at the moment I feel stressed. But I think I need to try a bit more actively to relax. So this week, my goal is to download a relaxation track for my MP3 player and practice relaxing every day. Yes yes! I can hear you.....you're wondering when I'm going to download it and when I'm going to relax??. I don't know yet!


PS I'm going to start with this website www.painsupport.co.uk
It is designed for anyone in regular pain and in need of relaxation, providing effective ways of controlling stress and pain. That was quick work!! MM x


Sunday, 24 June 2012

Severe Migraines and creating a Support Network

I have learnt through my own experience this week the importance of having an escape plan and a support network around you to help you when you have a Mount Vesuvious migraine.

You know the ones I mean: they erupt violently, exploding pain all over your body.......when just moving a centimetre makes you want to spew the contents of your stomach and you feel as though there is a hot screw burning a hole out of your eye socket and a blunt stake shoving its way out of your skull. The only place you can be is in bed, staying still, like a dead body, with the curtains closed and no noise.You don't want to be responsible for yourself let alone anyone else.....you're half awake, half asleep, dreaming of being in hospital so you can opt out of living, thinking, doing.

The reality is that as adults, and mums, we have to find a way through this and carve out an escape plan (alias a support network) that works when we have a Vesuvious type migraine. We have to do this for our children, for our partners and above all for ourselves.

Well, last Thursday, I woke up with a Richter Scale 5 migraine and before I could say "argghhhhh!", I found myself playing hangman with child no 2. ????

My brain was not working. Panic and anxiety were setting in but at the same time I was saying to child no 2: "Is there a 'p'?" Then to myself: Who can help me? how can I get them to school? To child no 2: "how about an 'e'?" Then to myself: how can I get them dressed and make their lunches? To child no 2 "what about 's'?" I not only found myself playing hangman, I wanted to be hangman!!

I am very lucky. I have in-laws close by (retired) and my own mum and dad happened to be staying with my sister who also lives near by.......3 phone calls later (which wasn't easy on the old head!), I had my helpers lined up and ready to do all those jobs my brain and body couldn't cope with. The children thought it was great and I slept the morning away. Phew, what a relief.

Friends also were a great support, offering sympathy via text and more offers of help. As migraine mums we need to find a system that works as well as possible in what is effectively an emergency.

Most of the time my volcano is smouldering and I never quite know when it is going to erupt and what number on the richter scale it's going to be. So I'm learning, like every good scout, to be prepared and create a rescue plan. This has to be flexible according to who is around, but creating a bank of people who you can call upon at a moments notice is vital. The erupting volcano doesn't just affect mums, it adds worry to our partners who feel helpless and it may even frighten our children who could be worrying that we are not going to be able to be mummy anymore. Children can't think beyond the moment afterall.

So, imagine you are standing at the bottom of Mount Vesuvious with your family..........and it begins to erupt. Who ya gunna call? Who's your "phone-a-friend?". Who ever they are, they are worth a million.

PS: there is a fantastic forum for people with migraine. I've put it on my resources section. You may find this a source of great support when you are feeling unwell. I've always thought it would be impossible to really run a migraine support group in my local area as I think we'd all be ringing in, saying we couldn't make the meeting as we had got a migraine!! At least the idea of a virtual support group means you can access it when you need to and when you are able to. If you have any ideas on how to manage your Mount Vesuvious Migraines, please leave us a comment! MM x


Tuesday, 19 June 2012

Migraines, Stress and tiredness

Stress and tiredness are known triggers for migraine for many of us. Tiredness makes stress much harder to handle. Migraines make tiredness and stress much harder to handle too. Stress can come in all sorts of forms.....I have 3 forms......they are 9, 6 and 3 years old.
2.12am: I'm asleep, lovely dream
2.13am: I find myself standing up in Child no 3's bedroom, telling her in slurred speech, not to worry about monsters!
3.10am: child no 3 kicks me out of her bed! Literally! I must've fallen asleep!
3:15am: I drift back to sleep in my own bed...bliss.
7.08am: I'm asleep, More bliss.
7.09am: I find myself kneeling on the floor, trying to find the cut that child no 2 has found and is deeply upset about. I'm feeling around her leg, my eyes are still shut.
7.10am: discusssion with child no 3 about where our poo goes.......
7.11am: my eyes open to see a pair of child no 1's pants (yesterdays) come flying at me. yuk.
7.12am: I'm awake (I think)

I have heard of the "slump" migraine: a migraine in response to a prolonged spell of stress, tiredness and multiple triggers. Usually they suggest that slump migraines occur at weekends but I guess with parenting being a 24/7 job, it can occur at seemingly erratic times depending on what is going on in your life and who happens to be waking you at the time!

My sleepless nights have coincided with multiple birthdays, Father's Day, family celebrations, an osteopath appt, hormonal changes and trips to fun fairs (again!). I've found myself feeling stretched. I've worked hard at not getting a migraine. Here's a summary of the week:

12 deep breaths taken when I realised I had forgot to pay up for child no 2's party (all is fine now but I'm currently looking for an admin assistant and an office....and a salary.....and a weeks holiday)
11 presents to wrap
10 crates of shopping ordered via supermarket.....I may have got carried away on the 3 for 2 offers...................
9 texts sent to parents who hadn't replied to party invites (where's my admin assistant? I should get a bonus for all this work!)
8 hours at wet wet wet fun fair with children. Fun.
7 hours spent on the internet trying to order presents...why do I leave it so late?!
6 roll downs (pilates) to counteract sitting at computer for 7 hours!
5 trips to the shops (I'm fed up of shopping!!)
4 sleep deprived nights (how do they know it's a bad time to wake your mum up? Do they have a meeting just before bed and decide whose turn it is to call for mum?!)
3 birthdays in family (my dad (15th June), no 1 child (18th June) and no 2 child (19th June).....bad planning I know)
2 lots of aspirin
1 big sigh of relief as planning, and party go well.
0 migraines......well, until yesterday, when the Beast decided that enough was enough and he wanted some attention.

I guess while the adrenaline is around during a stressful time in your life, you may be more protected from getting a migraine? Then, when the reason for the adrenaline has gone, the "slump" occurs. I understand why I have this migraine. I'm not fighting it. I'm just going to rest as much as I can, when I can and hope the Beast calms down soon. I'm off now to nurse the Beast. Can anyone think of a song for this week?!

Sunday, 10 June 2012

Suffer with migraine? Feeling angry? Read on......

It's been a war zone this week. The ugly beast has been stationed on code red. He must've had orders to lay me low because he (and it is a he...don't ask me why) has certainly achieved an almost World War 3 standard of pain, depression and fatigue. Since I last wrote, I have struggled to live a normal life as the Migraine Beast has put me into solitary confinement every day, taking me away from my children and husband. I have managed to escape a couple of times and enjoyed myself only to find the Ugly beast has dragged me back into the isolation cell afterwards, attacking me on all sides and at all times of day and night.

I've felt very angry towards this Ugly Beast. Angry that he chooses a family holiday to announce war. I turn into Sergeant Major Migraine Mum, prepared to go into fighting mode. A war mentality descends and nothing is going to stop me, I will beat the ugly beast off. But this wears me down even more and I start to listen to his lies........you're letting your family down, they'd all be better off with someone else, you are weak, you can't even run a house let alone have a job........and so the dark thoughts take over, and a form of self torture begins......

Unfortunately I have discovered this week that when I'm angry and in battle mode, the anger goes towards people I love and myself.....this has got to change.

Luckily, my family love me!  Wow, what would I do without them? I love my family so much, they keep me in post....there are times when I want to go AWOL....a kind of perverse way of protecting them from dealing with the consequences of this illness and seeing mum/wife in such a state. I would never run away, it's just the only reaction I can have sometimes when in the depths of this war, I can't see any sign of peace. The Ugly Beast has me trapped in his prison and I want to escape.

But is this Beast really at war with me?? I know I'm at war with him.....a friend of mine with her own severe experience of migraine has enabled me to challenge this view of the Ugly Beast. Ugly it may be (and it really is Ugly), but also needy of attention....the Beast could be like a child who feels unloved, crying out for care and attention. This Unloved Beast is trying to gain my attention but every time he voices a need, I fight him off. I try to ignore him. And what happens when you ignore your children?.....they start to misbehave!!

So, if I don't listen to the Beast, then he starts to misbehave....sending me more signals that I need to listen and respond.

So, rather than soldiering on and fighting, I need to do something REALLY restful, restorative and relaxing....the 3 R's!! Then the Special Needs Beast (still Ugly) starts to calm down, happy that you are finally listening to his needs. The pain begins to go, the lows begin to fade and the fatigue cries out with relief that finally you have given the tank a bit more fuel.........no fighting, no war, no guilt, no shame...just kindness and a sense of peace that at this moment in your life, it is a time for rest.......AND you are still loved despite the beast's presence.....

I'm going to finish with words from my nearly 9 year old son who is turning into a very sensitive and kind person. He said to me "mummy, I love you, I love you even when you're ill".....that is priceless to me and cuts into all the rubbish lies that my mind tortures me with. What would we do without love? All you need is love (and triptans, aspirin and sleep)....I can feel another song coming on..........

www.youtube.com/watch?v=r4p8qxGbpOk





Sunday, 3 June 2012

Words from the King for chronic migraine sufferers!




I am having a HM day. No, not a 'Her Majesty's Day' (though I realise it is the Queen's Diamond Jubilee; I have waved my flag at her on the telly!) No, I'm having a Hard Migraine day. It's all caught up with me today and I'm feeling pretty low, sore and removed from the world. Not an easy day to feel removed from the world, as we, the Commonwealth and my family celebrate the Queen's Diamond Jubilee. No party animal in me, I'm sorry to say for my family, I've just wanted to curl up and hide!

Anyway, I got a blog alert from another migraine blogger who said that the USA are just starting Migraine Awareness Month and wanted people to blog about various subjects on designated days. I'm feeling a bit subversive so I have jumped a few days already and picked one I fancied doing.....picking one of your favourite songs that link how you feel about your migraine. And I thought what better artist to pick on the Queen's special day, but the King of Rock 'n Roll, my favourite, Elvis Presley.

Elvis Presley suffered from migraine. Yes! it makes me feel closer to him too! He was also a spiritual person. I like that too. 'If I can dream' happens to be one of my favourite songs about life. It's real...it doesn't hide from the pain of living but signals a strength and hope at the same time. He sings it with such passion and I feel that passion about how I want to live my life. My children are witnesses to my love for this song as they see me singing along to the King in the kitchen using a wooden spoon! Here are my rambling thoughts......

1. "you're lost in a cloud, there's too much rain..." well I have wondered if the weather has made a difference today.....it's rained and been gloomy all day! I blogged about weather last week. There are studies that have indicated a link between certain types of weather and migraine.

2. "you're trapped in a world troubled in pain"......when I have a migraine I feel like I don't belong to the world, it's a place that brings pain because of the bright lights, smells, noises, movement. I don't want to belong to it when I have a migraine.

3. When Elvis sings about there being lights burning brighter somewhere.....well, I'm sure he isn't singing about horrible flurescent lights that you get in big superstores or the energy light bulbs that produce light that seems to sit on top of your eyes!!....he means a soft, bathing light that creates an ambience of relaxation and calm that makes you feel good.

4. Elvis sings about the hope that 'the answer is going to come somehow'. Well, of course I think about there being better medication and understanding of migraine, but for me it also means and that even though you may feel very low when suffering from migraine, you have to believe that you will find a way through it. He sings that we will still have the strength to dream and the strength to go on. And you do. Everhopeful and ever strong. (I'm turing into a poet!)

Please raise a glass of pretend champagne to the Queen (that's the closest I'll get to alcohol!) and let's raise a glass to tomorrow too. For fun and laughter and no migraine.
If you fancy sharing your favourite song and saying why, blog away and leave me a comment. MM x

Monday, 28 May 2012

Migraine and Weather

Hello my FBR's (fellow blog readers). I'm in my sunny garden! Yes!! The UK has finally discovered the Summer. The paddling pools are out, I'm showing my rather white legs, the children are running around naked in the garden, and icecream, ice pops and ice cubes are being consumed in abundance. We are finally, after a long month of rain, basking in high temperatures and sunny days.

And I've had 3 migraine attacks since Wednesday. That Ugly Beast is back with avengeance!

The Ugly Beast must like a spot of sunbathing as it came to visit me on the day the hot weather started. I suddenly remembered that I can find the Summer hard work. Everyone is rejoicing in the sudden appearance of the heat and sun and I'm feeling like a right old party pooper (English saying for someone who can ruin everyone elses' fun!) I love the sun but my brain appears to have a reaction to it.

The other two attacks may or may not be due to the weather but I'm pretty sure it has contributed to me feeling unwell.

Research
There are a few studies on the influence of weather on migraines, none of which prove that weather is definitely a factor. But neither has it been disproved.

The BBC reported on a study that found that the risk of migraine goes up by 7.5% every 5 degree celsius increase. So I guess the sudden swing over night last Wednesday may have been a factor.....

A study in Canada reported that South Easterly Winds can affect migraine. There's plenty of wind in our household (3 children who laugh their heads off when someone blows off.....can toxic smell cause a migraine?!) But reading that makes me think I must watch the weather more often! In Germany there is a telephone number you can ring to find out the changes in weather, to find out the risk to your health......like it!!! A migraine hotline......

Another study states that low Barometer readings (stormy, cloudy skies) can induce a migraine 2-3 days later and high humidity can also have the same effect.

We don't have much chance really do we!?!

A preventative approach
So what is the answer to this? Firstly, the research suggests that migraineurs try to avoid as many other triggers as possible during the above mentioned weather changes. Whilst I agree with this, I also think it
is quite often impossible, especially when you have so many other triggers that are out of your control (children!).

Secondly, they suggest you take your medicine as soon as you notice any changes in your head/neck. Good advice. You won't stop a migraine coming by taking the triptans before the migraine appears....

Eat healthily....yes
Drink loads....of course
Exercise regularly.....try to, dancing to the Wii!
Get enough sleep.....not always under my control with children waking with bad dreams, sick, temperatures, or just needing a cuddle.....but I do try to catch naps or go to bed early if nights are restless ones.
Have sunglasses with you always (see link for Mediview migraine sunglasses)

The final suggestion is to keep a diary. This is excellent advice as it helps to show you where your brain is most sensitive. By doing this, you are more likely to learn to avoid the triggers you can avoid whilst the weather is causing you a bit of strain.........

Ultimately, it's obvious we can't avoid the weather but we can learn to manage our Ugly Beasts in the weather to maximise our good health.

I would love to hear your thoughts on whether the weather (!) is a trigger for you.....please leave a comment if you can so we can learn from each other how to cope with this uncontrollable trigger....

See The Migraine Trust for an online diary www.migrainetrust.org. Also the Migraine Trust has a travelling migraine diary...a book is sent for you to write your migraine story in and it is uploaded onto Flickr with everyone elses' stories. This will become a document for developing new nationwide policies. If you prefer to have a hard copy of a diary then visit  www.migraine.org for a printable diary

















Monday, 21 May 2012

Migraine: to be cured or not to be cured........

Where has the Ugly Beast gone? Still frightened by the prospect of Botox? Migraine Mum has had no migraine since last weekend (hurray!). Instead, I had a virus which gave me a thumping head and the shivers for 3 days, a bit like having a migraine (booo!) but I wasn't left with that horrible feeling of being drained and low (hurray!). I wonder if the Ugly Beast decided that the viral headache was enough for me this week and gave me a reprieve?! He normally visits me about 2 times a week!

So, on Thursday I had an idea that me and my family could spend Saturday going to a theme park. A big day out. We decided that we wouldn't mention it until we were sure we felt up for it (always a sensible plan when you're not sure if you're going to have a migraine or not, or if any of your children are going to be sick the night before!).......wow, what excitement in our house there was on Saturday morning!!

Anyway, I knew I was at risk of migraine. Big days out always present a few more challenges.
Probably because:
  • I don't drink or eat as much as I normally do
  • there is a tendency to eat rubbish
  • car travel can make me feel worse
  • the stress of dealing with 3 children on a long day out too can stretch me at the best of times. 
  • the rides can make me feel icky which seems to provoke my head!
  • excitement can bring on a migraine........and I was very excited!!
  • tirednesss can trigger a migraine too
So I went in prepared, drinking water, eating gluten free snacks regularly, always on the look out for rides which might make me feel icky and being prepared with the children with snacks etc. I stayed as calm as I could but screamed like hell on Vampire, laughed my head off in Bubbleworks as I got soaked and giggled to myself when I sat on Professor Fartawhatsits chair in Hocus Pocus Hall ( my children had walked off and I was left shouting "look I'm blowing off!" to a complete stranger! Can embarrassment bring on a migraine?!) We had a fantastic day!

Its success made me think......... I have finally accepted that I suffer from migraine. This may sound odd.......I have had them since I was 18yrs old and remember having sicky heads before that on buses or in cars. That's about 24 years of fighting the illness, believing that I would find a cure one day and it would all be ok. Of course I haven't found a cure and this has only made me feel worse in the past. Why can some people get cured by giving up tomotoes or seeing a hypnotherapist once......Well I've decided to do it differently.....I don't want to live my life feeling I should be cured but by accepting the Ugly Beast in my life, I can learn to live with it. And it seems that may be by learning to accept the difficult things in your life, somehow their hold over you is not as great, the dark thoughts lessen and you are freer to get on with your life. The Holy Grail Quest is I believe, to find effective ways of managing this illness, to find ways of increasing your threshold to migraine, and not necessarily to be cured........and may be then, the Ugly Beast may get a bit bored and decide to blog off for a little bit.....